Canine epilepsy and dyskinesia consortium

Canine epilepsy and dyskinesia consortium                        3rd August 2020

 

Rationale and goal

Epilepsy is the most common neurological disease in dogs and affects all breeds of dogs. Epilepsy can be caused by many reasons, including genetic and environmental factors and trauma. Current epilepsy research is progressing in both clinical and molecular etiologies but more harmonized approach is required to facilitate breakthroughs. Towards this goal, an international group of researchers called International Veterinary Epilepsy Task Force (www.ivetf.org) has been established. As a part of these efforts, Dr. Lohi group together with Dr Fischer’s group have recently developed a new epilepsy and dyskinesia survey for joint consortium use to collect comprehensive and harmonized clinical data for better diagnostics, care and molecular research. So, the goal is to harmonize epilepsy phenotyping in dogs across breeds and worldwide to facilitate clinical and molecular research with large and well-established study cohorts. 

 

Epilepsy and dyskinesia survey in Petsofi

An online epilepsy and dyskinesia survey has been developed in 2020. The survey utilizes Petsofi’s (www.petsofi.com) digital platform for secure, interactive and self-reporting features. These features should facilitate the analysis, diagnostics, care, follow-up and overall research of epilepsy and dyskinesia. The survey is free to use for any dog owners but requires registration to the Petsofi’s GDPR-valid platform. Veterinarians can also set up own accounts in Petsofi and use the platform for research purposes and/or paid veterinary consulting. Survey participant will add his/her animal in the platform and can then take the epilepsy and dyskinesia survey. Survey is planned to become self-reporting giving a preliminary diagnosis and seizure type categorisation based on the survey selections. The owner can share the survey with their vet for further consulting and treatments.

 

Data sharing between consortium members

Petsofi platform enables dual functions by providing opportunity for immediate online veterinary care and by collecting data for research purposes. Data is collected on the Petsofi’s secured server. Petsofi has licensed the survey from University of Helsinki with an agreement that the accumulated data will be shared for research purposes with owner’s consent. Owner’s consent for the sharing of the data with the University of the Helsinki and the entire epilepsy consortium will be asked from the owners prior to starting to complete the survey. Upon consent, Dr Lohi’s research group will get a copy of the data and shares it with consortium members according to the principles of the consortium agreement, consortium members have committed and signed. Data will be used only for anonymized peer reviewed research purposes.

 

Current consortium members

The list of active and signed consortium members can be found here. New members may join and previous ones leave. Active members can have access to the copy of the anonymized data for research purposes according to the consortium principles. 

 

The list of current epilepsy consortium members:

Name and title

Research group

Affiliation

Email

Hannes Lohi, prof

 

University of Helsinki, Finland

Hannes.lohi@helsinki.fi

Tiina Heinonen, PhD student

Lohi

University of Helsinki

tiina.heinonen@helsinki.fi

Emma Hakanen, PhD student

Lohi

University of Helsinki

emma.hakanen@helsinki.fi

Marjo Hytönen, Adj. prof.

Lohi

University of Helsinki

marjo.hytonen@helsinki.fi

Tarja Pääkkönen, Ass. prof.

 

University of Helsinki

tarja.jokinen@helsinki.fi

Andrea Fischer, DVM, prof.

 

LMU, Germany

A.Fischer@medizinische-kleintierklinik.de

Franziska Wierlander, DVM

Fischer

LMU, Germany

F.Wielaender@medizinische-kleintierklinik.de

Luisa De Risio, DVM

 

Linnaeus

Luisa.DeRisio@linnaeusgroup.co.uk

Andrea Tipold, DVM, prof.

 

Univ of Hannover, Germany

Andrea.Tipold@tiho-hannover.de

Paul Mandigers, DVM

 

Univ of Utrecht, Netherlands

p.j.j.mandigers@uu.nl

Fiona James, DVM, Ass. prof.

 

Univ of Guelph, Ontario, Canada

jamesf@uoguelph.ca

Frank Steffen, DVM

 

Univ. of Zurich, Switzerland

fsteffen@vetclinics.uzh.ch

Holger Volk, Prof

 

Univ of Hannover

Holger.Volk@tiho-hannover.de